Madison's Walk for Wishes ~Charity walk~

Monday, September 21, 2009

Here's your chance to help a Beautiful little girl... She is the daughter of a very close friend- She is such an Angel :0)


10/3/09 Walk-for-Wishes for Madison Smith!
Join us as we walk for Madison on October 3rd. Be a part of a great event to help Madison's battle with SMA. All of our community support is greatly appreciated.
Special Guest MC Actor Michael Santi from the "Gutter Diaries" and "Subplime" will be there to lend support to a very special little girl!
*If you would like to register for the event or help us collect collect pledges please download the forms below and mail to:
Madison Smithc/o Lisa Bartoletti- Melvin10410 NW 21st StreetSunrise, Florida 33322
Please make all checks payable to: Madison Smith
Madison's Story
Madison was diagnosed with a Spinal Muscular Atrophy (SMA) on October 2, 2007, two days shy of her first birthday. Since then Madison has lost most of her strength in her entire body. She cannot bear any weight on her legs, cannot lift her head when laying down, cannot cough on her own and cannot take deep breaths while sleeping. She is very bright, social and happy little girl.
There are ways to improve and even extend Madison’s quality of life. To do this Madison uses a Cough Assist, the Vest, Nebulizer, BiPap, Suction and Pulse Oximeter daily and more when she gets sick.
She needs Respiratory Therapy, Physical Therapy, Water Therapy, Occupational Therapy, and Speech Therapy five times a week. She requires special orthodic bracing called AFO’s that she must wear all day long every day, knee stablizers and a hand splint as tolerated. She must use her standing frame daily to help with circulation, stretching her limbs, bone growth, and constipation. She is on a special Amino Acid Medical food formula for easier digestion and to support her intestinal tract, in addition to a strict vegan diet.
She must have Vitamins, Glutamine, ProBiotics, cornstarch and Miralax daily as well as Carnitine, Oral Albuteral medication and Synergist shot monthly. We have more hope now knowing we have a good aggressive plan for care. Lots of work, but she is worth every minute. We truly believe in will power and taking aggressive steps for the health of your children. We will do everything in our power to keep Madison well and to one day win this battle against SMA.
To learn more about Madison, How you can help or for information on the walk- visit

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